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My story

I never really thought my syndrome had a significant impact on me as a person. I was alone for most of my life, thinking I was the only person in the world with this rare disease. Until I was correctly diagnosed and met others like me, I really struggled with my differences. I was born … Continue reading My story →

peaceloveheal Uncategorized Leave a comment June 30, 2017January 20, 2021 4 Minutes

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peaceloveheal

peaceloveheal

Social worker, rare disease advocate, and adventure enthusiast embracing life with a rare diagnosis.

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