Learn more about CLOVES or join the CLOVES community. Their resource page is a great resource for those in need of assistance or interested in learning about what resources are available through the CLOVES Community.
Boston Children’s Hospital has an abundance of information on CLOVES Syndrome. You can also meet the Vascular Anomalies Team, a team at Boston Children’s dedicated to the treatment and care of CLOVES patients and other related syndromes.
Looking for shoes to fit you or your child who has an overgrown foot? Big N Wide Shoes has a wide selection of shoes that may be a comfortable fit!
Rare Disease Day is the last day of February every year. It’s a day to share our stories and spread awareness on the reality of living with rare diseases. Take a look at their website where you can read about the day, the campaign, and people’s stories. If you or a loved one has a rare disease, you can submit your story to their website. This year, we “showed our stripes” to advocate for rare diseases. With its distinctive stripes, the zebra is the official symbol of rare diseases in the U.S. Learn about the 10 ways YOU can get involved next year.