I've been enjoying attending music festivals for about 7 years now, and that is apparently a good enough amount of time to judge how much my disease has progressed over the years. Music festivals are exhausting, especially camping ones. They involve long days of walking, standing, and dancing, typically in heat if the festival takes … Continue reading An ever-changing journey
Tag: CLOVES Awareness Day
It will always be a part of me
Every year, I sit down at my computer and do my best to write something meaningful about CLOVES Awareness Day, and it brings on a lot of self-reflection. This is such an important day for so many people, and I'm so grateful to be a part of the community that never fails to come together … Continue reading It will always be a part of me
CLOVES awareness and what it means
CLOVES Awareness Day. August 3rd. This day means a lot of things. A day to educate others about CLOVES. A day to share your story about living with CLOVES. A day to wear green or your CLOVES merch to represent this special day. A day to donate to CLOVES Syndrome Community to support them or … Continue reading CLOVES awareness and what it means
PeaceLoveHeal 