Rude staring will always happen, but I don’t always have to stand for it

Two weekends ago, my fiancé James and I had just arrived to the pumpkin patch for some fall festivities. We were meeting my sister-in-law later as well for a nice little Saturday. James was wearing nice pants and a Henley top, and I had on some baggy jeans, a flannel, and of course, my normal … Continue reading Rude staring will always happen, but I don’t always have to stand for it

Top 5 lessons I’ve learned living with my natural imperfections

We all know living with an anomaly can suck, no matter what it is. Throughout my life experiences so far, I’ve learned several lessons that over time have helped me rebuild the parts of my character that so often got torn down from the tough times. Though this may not apply to all since everyone … Continue reading Top 5 lessons I’ve learned living with my natural imperfections

Parenting a child with CLOVES • by Julie, a CLOVES mother

My daughter asked me to write about what it’s like to parent a child with CLOVES Syndrome. When I started to think about what to write, I realized how hard it is to put into words as it is such a unique experience given the rarity of CLOVES Syndrome. Our journey began when Lindsay was … Continue reading Parenting a child with CLOVES • by Julie, a CLOVES mother