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Tag: clovessyndrome

Give me a break

Not too long ago while at the gym, I was completing a set on the squat rack when I noticed an older man across from me on the other squat rack giving me odd looks. I could tell he was staring at my overgrown foot so I responded to this in my usual fashion - … Continue reading Give me a break →

peaceloveheal Uncategorized 2 Comments June 21, 2022June 21, 2022 5 Minutes

What it means to be rare

What does it mean to be rare? Being rare isn't easy. And it's different for everyone. For me, it means a childhood of searching the ends of the earth for a correct diagnosis, undergoing experimental surgeries and procedures, and wondering what the future holds... It also means waking up sometimes with random backaches where I … Continue reading What it means to be rare →

peaceloveheal Uncategorized Leave a comment February 28, 2022January 23, 2023 5 Minutes

About Me

peaceloveheal

peaceloveheal

Social worker, rare disease advocate, and adventure enthusiast embracing life with a rare diagnosis.

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  • Give me a break
  • Rude staring will always happen, but I don’t always have to stand for it
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