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Why I raise awareness

CLOVES Syndrome Awareness Day 2020

peaceloveheal awareness Leave a comment August 3, 2020January 20, 2021 5 Minutes

A change in perspective

All my life growing up, one of the worst parts of living with CLOVES that always gave me anxiety was when strangers would ask me what happened to my foot. The stares, points, and questions about my syndrome really brought me down, and having to awkwardly respond to people when they asked that question was … Continue reading A change in perspective →

peaceloveheal awareness Leave a comment March 10, 2020March 10, 2020 4 Minutes

CLOVES Conference recap

A brief recap of the latest CLOVES Family Conference

peaceloveheal Uncategorized 4 Comments August 7, 2019August 9, 2019 6 Minutes

About Me

peaceloveheal

peaceloveheal

Social worker, rare disease advocate, and adventure enthusiast embracing life with a rare diagnosis.

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