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PeaceLoveHeal

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Tag: inform

Why I raise awareness

Roughly eleven years ago, I was diagnosed with CLOVES Syndrome. I was fourteen. I spent the first fourteen years of my life feeling incredibly alone, singled out, and wondering when I would ever know or understand what was wrong with me. That may be a common feeling for others out there in similar situations prior … Continue reading Why I raise awareness →

peaceloveheal awareness Leave a comment August 3, 2020September 24, 2021 5 Minutes

A change in perspective

All my life growing up, one of the worst parts of living with CLOVES that always gave me anxiety was when strangers would ask me what happened to my foot. The stares, points, and questions about my syndrome really brought me down, and having to awkwardly respond to people when they asked that question was … Continue reading A change in perspective →

peaceloveheal awareness Leave a comment March 10, 2020March 10, 2020 4 Minutes

About Me

peaceloveheal

peaceloveheal

Social worker, rare disease advocate, and adventure enthusiast embracing life with a rare diagnosis.

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