Norms can change

"Anti-inflammatories, knee sleeve, home exercises focused on knee joint stability, and if there are no improvements or symptoms worsen in 6 weeks, come back in." My orthopedic doctor had just finished evaluating what the heck happened to my knee 2 weeks prior. My right knee, the one that didn't have issues before. Now I have … Continue reading Norms can change →

An ever-changing journey

I've been enjoying attending music festivals for about 7 years now, and that is apparently a good enough amount of time to judge how much my disease has progressed over the years. Music festivals are exhausting, especially camping ones. They involve long days of walking, standing, and dancing, typically in heat if the festival takes … Continue reading An ever-changing journey →

A rare community of support

Life with a rare disease brings so many unique challenges for every individual impacted. With CLOVES in particular, this disease manifests in every person differently so no two people diagnosed have the same symptoms. That means that not only do we have a unique experience being diagnosed with a rare disease, but we live an … Continue reading A rare community of support →