The first medication to treat PROS was FDA approved, but why am I hesitant to try it?

The day I learned about the first "effective" treatment for PROS conditions/CLOVES Syndrome, I was at the 2019 CLOVES Conference in Boston, Massachusetts. Dr. Canaud shared his progress on this in a compelling presentation. It felt monumental in that moment to see that a medication actually targeted the genetic mutation PIK3CA that causes CLOVES Syndrome. … Continue reading The first medication to treat PROS was FDA approved, but why am I hesitant to try it? →

Clinical Drug Trial Experience

I think it’s safe to say that any new medication that can potentially treat CLOVES Syndrome is quite a groundbreaking concept right now. It gives us hope that we are making progress. And for the last few months, I've have the opportunity to participate in one of the drug trials available: The ARQ Trial, which … Continue reading Clinical Drug Trial Experience →